The non-profit association

The association

Our mission

Hope For Gabriel is a French non-profit association (loi 1901) founded in August 2025 out of the story of Gabriel, a little boy living with post-infectious bronchiolitis obliterans, a rare chronic lung disease. It began as one family’s fight and now works for every child and every family living with this disease.

Inform

Explain bronchiolitis obliterans in plain words, share what research says and recall the simple habits that protect babies.

Connect

Break the isolation of families through BO Community, the international support platform created by the association.

Support

Help families facing care that is not covered, starting with Gabriel’s, and contribute to research projects.

Why the association exists

Gabriel was born healthy on 6 April 2025 in Fortaleza, Brazil. At three weeks old, bronchiolitis sent him to hospital. He stayed five months, including ninety days in intensive care, and came out with a diagnosis: post-infectious bronchiolitis obliterans.

Looking for answers, his family found a poorly documented disease, isolated parents in every country and very limited research. The association was created to change that.

What we do

  • BO Community: the international support platform on bronchiolitis obliterans (patient stories, forum, research watch, directory of clinicians).
  • Les Cols du Souffle: in August 2026, Papy Robert cycled across the Alps to raise awareness of the disease. 925 km, 19 mountain passes, and around twenty media outlets covered it.
  • Links with research: the association is in touch with doctors, researchers and parent associations in several countries.

The board

The association is run by volunteers, all members of Gabriel’s family.

Michelle Descollonges

President

Gabriel’s grandmother

Robert Descollonges

Treasurer and spokesperson in France

Gabriel’s grandfather

Johann Roche

Secretary, coordinator of the international online presence

Gabriel’s dad

How funds are used

Donations and funds raised at events are used to:

  • pay for part of Gabriel’s care that his health insurance does not cover;
  • help families facing serious difficulties caused by the disease;
  • contribute to projects related to research on bronchiolitis obliterans.

Donations are collected through HelloAsso and on the association’s bank account in France.

Legal details

  • Name: Hope For Gabriel
  • Status: registered non-profit association under the French law of 1901, created on 23 August 2025
  • RNA number: W692011975 (Rhône prefecture)
  • SIREN number: 102 892 866
  • Registered office: Belleville-en-Beaujolais (Rhône), France