Latest post:

16/08

Translation

⚠️ This content is an automatic translation from the original French version. Some expressions may be altered. Feel free to report any mistake or awkwardness.

Gabriel spent the night with Paula, allowing Manuela and I to sleep together.

This morning, I picked up the keys to the apartment. It had not been cleaned and was really dirty. I also noticed that some things were broken.

Clearly, common sense is an individual thing…

I had prepared all the stuff to unload, but when I saw the state of the apartment I left nothing and went back to the flat, depressed.

I already don’t want to live in an apartment in the city, locked up, when we have everything we need at home… But we have no choice.

After a few washes, I ran into Manuela, who had an important meeting at work, and then off to the hospital.

In the afternoon, Gabriel was at his best! In fact, I’d never seen him look so good!

Well awake, with excellent saturation (even when his oxygen catheter came off), he wanted to play, was smiling… perfect.

I spent two wonderful hours with him, which lifted my spirits.

Then Manuela arrived. She told me she’d been talking to mothers whose children also suffer from bronchiolitis obliterans.

Some were discharged from hospital without needing oxygen, but over time their condition deteriorated, and they are now dependent on machines…

So post-hospital care really does seem essential. And these moms gave her some important advice.

We’re going to fight to make sure Gabriel gets the best possible care.

At the same time, we’re still looking for a new home for our cat Pompom. We’d hate to have to leave him on the street.

The content published on this site constitutes personal testimony and the expression of a lived experience at a given time. It is not intended to accuse, judge, or generalize situations, individuals, or organizations.

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