Earlier this week, I submitted a new official complaint. It included several points for improvement. For the first time, I also pointed out errors in the communication of medical reports. For example, a rate presented as decreasing when it was actually increasing (mentioned on the blog if you follow). This complaint was forwarded yesterday to the head of department.
According to Manuela, who was present at the time, the chef took it very badly. Perhaps a medical ego problem? In any case, she was hard on Manuela. Which isn’t very professional, given that she’s already very sensitive, as you can imagine…
This has created tension, because I can’t stand being asked to keep quiet when there are mistakes. And yet, many families don’t dare make complaints. They’re afraid it will affect the care given to their child.
If some doctors are stupid enough to act this way, then yes, we have a real problem!
Maybe it’s also a culture shock between France and Brazil. I don’t know. But what is certain is that it has caused sparks to fly in recent hours…
News from Gabriel
Gabriel spent a stable night. He was sedated to keep him calm. His cousin Milèna stayed by his side.
This morning, we arrived at the hospital at around 10am. We wanted to receive the medical report together. Management refused. Only one parent had access. So Manuela went up alone. She then gave me the information. I was also able to ask the doctor my questions a little later.
Regarding bronchoscopy: the medical team explored the trachea and bronchi. They blew air into areas of atelectasis. One opened partially. The other a little less so. Another small area was also detected, at the bottom of the right lung. According to them, nothing serious.
Mega-good news: no major lesions were observed.
There were few secretions. Samples were taken for possible analysis.
According to the doctor, Gabriel’s breathing difficulties are mainly muscular. After two months on assistance, he’s finding it hard to breathe on his own. He tires very quickly.
In addition, a blood culture taken two days ago revealed a new bacterium.
In fact, it’s the same as at the beginning of her hospitalization: Staphylococcus hominis subsp. hominis .
This is a bacterium that many people have on their skin. It’s usually harmless. But in Gabriel’s case, it can become dangerous. And it was probably the bacteria that had entered through the PICC.
He is currently on antibiotics. He is taking Vancomycin and Meropenem. The treatment should last two weeks. The two bacteria found this week are those already known. It’s likely that they never completely disappeared. And according to the day’s blood results, they’re already quite weak (CRP <5 in the normal range).
The goal now is to keep Gabriel calm. This will help avoid reintubation. He needs to manage his breathing on his own.
If this is not possible, two options will be considered: a new intubation or a tracheotomy.
None of these choices is desirable, and we’re counting on you to send out all the good vibes to make it happen!
It’s also essential that he continues to gain weight. Specialized nutrition helps him build muscle.
This strengthens his ability to breathe on his own.
So that’s the summary of a new day in our lives.
GABRIEL WE LOVE YOU!
