08:22
Gabriel spent the night with his cousin Welinton, who came to take care of him.
Everything seems to have gone well.
This morning, he saw his grandpa and grandma who came from France and are returning to France this evening.
I won’t hide from you that we are very concerned about the state of his lungs since yesterday’s scan.
We are now waiting for the doctors’ explanations today.
We pray, we send positive energy, love, anything you can do is welcome!
Gabriel needs it!
Thank you.
9:47 PM
Today, we received important information regarding Gabriel’s health status, following the scan performed yesterday.
I will try to summarize them as I understood, but all this is very complex and I might be mistaken about certain things.
The scan was performed for 2 reasons:
1) Despite visible improvement on daily chest X-rays, certain areas remained concerning.
2) Gabriel still had difficulties oxygenating properly, which prevented doctors from extubating him.
The scan revealed lung lesions, confirming that certain areas are damaged.
The medical team has therefore consulted several experts, and other specialists are yet to be consulted in the coming days to refine the diagnosis and establish the protocol to follow.
In parallel, we have also contacted an expert in India through a contact of the grandparents from France, originally from “Mauritius (it’s a small world). This contact also has two specialists in São Paulo, who could potentially collaborate with the” team in Fortaleza.
Among the hypotheses mentioned is obliterative bronchiolitis, a rare and serious condition.
Two treatment options are currently being considered:
- Pulse therapy (administration of high doses of corticosteroids) to stop the persistent inflammation.
- A temporary tracheostomy, to facilitate breathing and relieve Gabriel, while leaving his mouth free from the tube.
In addition to this, there is a probable inactive bacterial colonization of Stenotrophomonas maltophilia in the trachea, which complicates the situation and increases the risk of secondary infections.
Gabriel could have long-term pulmonary sequelae.
The recovery process could extend over several weeks, or even several months.
We are in a phase of uncertainty. The only thing to do is to wait, support, and hope.
The fact that he is still a baby may also work in his favor for a faster recovery. We hope so with all our hearts.
This evening, grandpa and grandma returned to France. On their end, they will inquire about the possibilities of accommodating Gabriel there.
We are indeed starting to consider moving, once Gabriel is out of the hospital. The region where we live is too humid and conducive to respiratory infections.
Whether it’s elsewhere in Brazil or abroad, it’s clear that our life will have to adapt profoundly to this new reality.
We don’t know yet what tomorrow will bring, but we are moving forward, step by step with hope.
Starting tomorrow, Manuela is organizing a common prayer every day at 9 AM Brazil time, which is 2 PM in France. The goal is for everyone to be able to send, at the same time, their thoughts, energy, and love to our little boy for a few minutes. Thank you all for your presence.
