10:07 AM
Some Positive and Negative News
Our little Gabriel spent the night without fever.
The oxygenation via the machine has decreased to 35% (it was at 45% yesterday), which is a good sign: it means he needs a little less help breathing.
His saturation remained between 94 and 100%, which is excellent.
His lung capacity continues to improve.
He’s eating a bit more and he had a bowel movement!
Regarding blood tests, it remains stable EXCEPT for the liver markers, which are not going in the right direction…
We are now waiting for the doctor’s opinion…
8:32 PM
Today, faced with the morning blood test results, I was a bit impatient waiting for the doctors’ feedback. With the help of ChatGPT and thanks to a chart that his grandpa updates daily, listing all the examinations, I tried to better understand the situation.
As the doctor had mentioned the possibility of consulting a specialist the day before, I took the initiative and contacted several of the best pediatric hepatologists in Brazil. After several attempts, one of them responded and agreed to give us an appointment on the same day.
This specialist thinks that Gabriel might be suffering from what is called critical illness-associated cholangiopathy. He explained to me that there is a possible treatment, Ursacol (ursodeoxycholic acid). It’s not a miracle cure, but it can help the liver recover, although it takes a long time, sometimes “up to a year. He also recommended not stopping the antibiotics if they are still necessary, and assured me that he would try to contact the” current medical team to see how he could help.
In the afternoon, we saw the hospital doctor, to whom I passed on this information. She said she would see what she could do.
Tomorrow, a friend of the doctor contacted this morning will come to see Gabriel to provide, if possible, another perspective and strengthen the medical team on this point. We’re keeping our fingers crossed!
The idea is really to have as many options as possible to help our little Gabriel!
Besides that, a few small developments in our circle: Gabriel’s uncle, who has sensitive bronchial tubes, had a fever yesterday. He went to get tested to make sure he hadn’t caught a virus, but everything is OK for him.
However, the grandmother, who came from France, unfortunately caught influenza and has to remain in quarantine for several days. As if this wasn’t exactly the vacation they had imagined, it’s a hard blow for everyone!
On the health front, the signs remain encouraging: the lungs and kidneys continue to “improve. The liver remains our main concern” today. But we keep hope, we continue to fight by his side, and we sincerely thank you for all your messages and support.
We’ll see you tomorrow for the next update, hoping the news will be better.
