Hello, son,
Latest News
Your pediatrician’s visit
On Saturday, your pediatrician came to our home for the monthly check-up.
Her message is clear.
Since the tile burst, the current apartment is not suitable for your health condition. We need to leave it for the duration of the repairs and test a healthier environment for 30 days to see if it improves your breathing and general condition. We can no longer risk staying in a place that could worsen your situation and that could have further issues while you are learning to crawl and walk.
Regarding vaccinations, several injections must be given or re-administered quickly. These include Nirsevimab for bronchiolitis, the MMR vaccine, the pentavalent or hexavalent vaccine, the third Covid dose, yellow fever, and rotavirus. Your immune system must be protected as much as possible.
The most concerning point remains nutrition. You are not eating enough and are barely gaining weight. You are on the verge of malnutrition. We will try to switch back to a slightly fattier milk, starting with Pregomin. If there is no significant weight gain in 30 days, a gastrostomy will be necessary.
This is very worrying because it will coincide with the worst season for viruses, bronchiolitis, and all that…
Regarding treatment and care, we are continuing everything. We are not letting up.
Overall, this advice puts a bit of pressure on us because there’s a lot to organize with many uncertainties. As if we weren’t stressed enough already…
Food and Weight
As the pediatrician pointed out, it remains complicated.
This morning, we resumed Esio to see if it can help.
It breaks your mom’s and my heart to see you refuse food.
We try to be patient, calm, and inventive. We listen to and try everyone’s advice.
But seeing you cry in front of the spoon, knowing the whole context, is a daily struggle.
Donations
A huge thank you to everyone who supported us this month.
Thank you to those who discovered us through the articles published in Le Patriote and Le Progrès.
As every month, I published the report of expenses and donations collected on the Hope for Gabriel website.
Thanks also to those who make monthly donations. This regularity brings us stability in a daily life that is anything but stable.
For our part, we try to reduce costs as much as possible. But there are always unexpected expenses, as you can see.
New project: Les Cols du Souffle
Grandpa Robert has launched a new project to highlight the association.
911 kilometers by bike.
20,752 meters of elevation gain.
16 stages on the Route des Alpes.
A challenge worthy of the fight you face every day.
We are actively looking for partners, corporate sponsors, media, and people who can host him during certain stages.
More information on the Les Cols du Souffle website, freshly put together by your dad: https://www.lescolsdusouffle.com/
Community project focused on bronchiolitis obliterans
Finally, regarding the bronchiolitis community website project, I am awaiting your mom’s validation to put it online and start communicating. It will highlight medications, care, professionals from around the world, and also all patients with their experiences. It seems the local hospital loved the idea, and I hope it will be adopted by families.
In short, we’re making progress…
I love you, my little potato.
Dad
