09h38
Gabriel spent a stable night with his mom and Geraldine.
I forgot to mention it, but yesterday he received his first visit from his grandparents on Manuela’s side.
The steps to set up home care are progressing: we should receive the equipment at the apartment today.
Since our numerous complaints, following the initial denial of the PGC, the hospital has become much more attentive and the service has clearly improved. You almost get the impression that you have to utter the words ANS and Vigilância Sanitária in official complaints to be taken seriously…
The real problem is that health groups like the one we’re in are both health insurers and hospitals. They control the whole system and do as they please. No wonder their managers are among the richest in Brazil.
20h47
This afternoon, we began receiving hospital supplies to prepare for Gabriel’s arrival home.
There’s a huge oxygen cylinder (75 kg, I think), a smaller 10 kg one for moving around, and a whole bunch of miscellaneous equipment with tubes and accessories.
To be honest, it all reminds me of how badly we failed as parents that first month, when Gabriel caught that bronchiolitis that brought us to this hellhole.
You can’t rewrite the past… But it’s hard to imagine your child attached to a 2-meter oxygen cable connected to a huge cylinder. I hope he’ll soon be able to do without it.
Tonight, I’m writing to you from the hospital. Gabriel is doing quite well, sleeping peacefully.
He’ll spend the night with Victoria and me. Manuela and Bastien are at home.
