Hello, son,
It’s 4 AM and you’re already awake.
Tonight, you’re a bit more of an early bird than usual.
Maybe you sense you’re going to have a blood test today?
A quick check to see if everything is okay and how your ACTH has evolved since its high level last time.
Yesterday went well.
Honestly, I’m surprised to see your progress this week.
On Monday, you were weak, thin, coughing and sneezing a lot.
You were recovering from a fever related to hand, foot, and mouth disease.
And you scared me. I was already imagining the worst.
And yesterday, you wanted to go everywhere. Curious, alert.
You’re eating well with a spoon.
I even think you threw your first tantrum.
It’s like you’ve become a different child.
I’m learning from this that you can recover very quickly after a virus.
And that just because you have bronchiolitis obliterans doesn’t mean it’s all over, contrary to what you find online when you search for this disease.
And that’s great. We’re going to show the world that we can move forward.
And most importantly, your mom and I are regaining confidence.
After everything we’ve been through, seen with other parents, heard, and read, we’re terrified of the slightest relapse.
In a few days, a surprise will arrive. I can’t wait!
I won’t be long today.
I’m going to take advantage of the fact that you’ve fallen back asleep and I don’t need to give you anything this morning to get ahead on my work.
Well done, son.
I love you.
Dad.
