Latest post:

12/06

Translation

⚠️ This content is an automatic translation from the original French version. Some expressions may be altered. Feel free to report any mistake or awkwardness.

9:56 AM

Gabriel spent the night with his mom.

This morning at 8 AM, he was still sleeping peacefully with normal vital signs.

12:45 PM

Doctor’s report:

  • Gabriel is stable
  • Blood tests are improving with a decreasing CRP and improved liver function
  • The lungs are stable
  • He needs a new transfusion due to anemia (probably due to the numerous blood samples required)
  • As everything is going well and there “are no” signs of “infection, pulse therapy should start soon (probably before the results of the” blood culture, today?, tomorrow? he will see)

2:03 PM

Confirmation: The pulse therapy will begin this afternoon.

What is it?

Pulse therapy is a medical treatment that involves administering a very high dose of corticosteroids (powerful anti-inflammatory drugs) for a short period, typically 1 to 3 days, often intravenously.

What it does in the body:

  • Quickly calms severe inflammation (in the lungs, brain, kidneys, etc.).
  • Strongly suppresses the immune system, which is useful when the body overreacts or attacks its own tissues.
  • Reduces severe symptoms in certain acute autoimmune or inflammatory diseases.

It’s a bit like sending an ultra-efficient fire brigade with a super-powerful water cannon to extinguish a violent fire in the body.

But since it’s strong, it’s used with caution and under close supervision.

For us, this is excellent news, as we’re taking another step forward!

Well done, Gabriel!

4:45 PM

Bad news: the pulse therapy has just been canceled.

The doctor got a bit carried away this afternoon when he told me it was going to be fine, thinking that, given Gabriel’s overall clinical condition and the improvement in blood results, the bacteria had disappeared.

But in reality, a bacterium is still present. They don’t know exactly which one yet, it will take between 24 and 48 hours to identify it.

They will also try to determine if this bacterium is simply colonizing his body or if it’s causing an active infection.

If it’s an infection, then they won’t be able to do the pulse therapy. But apparently, this is not the case, as Gabriel doesn’t show any serious clinical signs, apart from a slight fever, which may not even be related to the bacteria?

If it’s a simple colonization, they may consider doing the pulse therapy in parallel with antibiotic treatment.

In any case, for us to be able to say one day that he is no longer colonized, a treatment will be needed that will probably continue even after he leaves the hospital, for several weeks.

In short, nothing is certain, but we still have to wait 48 hours.

It’s frustrating!!!!

The content published on this site constitutes personal testimony and the expression of a lived experience at a given time. It is not intended to accuse, judge, or generalize situations, individuals, or organizations.

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