17h02
Spent the night with his mom and a caregiver we contracted (a new one whose first name I’ve forgotten).
The night went well. Big space poo after 3 days without one.
On the other hand, Manuela had to get angry with an orderly on the ward who made a mistake giving an aerosol and didn’t acknowledge her mistake. I filed two formal complaints today on other matters. It’s been a long time. We’re not giving up!
Gabriel’s breathing is more difficult. He has a lot of secretions coming out of his nose. We don’t really know why.
The physiotherapist said that one of the two atelectasias (bottom left) seems to have come back a little. The doctor ordered an X-ray. We’re waiting for it.
They removed the catheter from his arm. He now has no more blood injections. Medication is administered through the stomach tube. Which is great, because it reduces the risk of infection and also makes it easier for us to move him around, change his diaper and so on.
They continue to withdraw sedatives such as methadone. We haven’t seen any withdrawal symptoms yet. We’re hoping for the best.
They want to gradually entrust us with the administration of medication and teach us to perform aspirations (barbaric acts to which I’m not at all accustomed).
In parallel, active apartment search.
Otherwise, our little Gabriel was much more alert today. He watched all the videos you sent us.
He smiles regularly, especially when you make “prrrruuu” sounds with your mouth.
21h06
The X-ray showed a slight worsening of the two atelectasias, which explains Gabriel’s respiratory efforts. Despite this, there are no signs of infection, and his saturation remains stable at 100% on 1 L/min oxygen. As a precaution, he must remain in a sitting position, even when sleeping. Physiotherapy techniques will be applied in an attempt to reabsorb the atelectasis.
