Today is Mother’s Day in Brazil.
Needless to say, we would have liked to celebrate it differently.
The new oxygen “Oxynitro” was installed last night. Its purpose is to further “vasodilate” the lungs.
We imagine this is to help oxygen enter more easily.
His oxygen saturation oscillated between 88 and 91
The night was fairly stable. (2 drops to 80, then back up to 90).
Around 3 AM, he had a fever of 38.2°C. They lowered his small bed heater and it came back to 37.6°C at 5 AM.
We sing “Les Champs-Élysées” by Joe Dassin to him, promising that we’ll visit them together.
More updates in the afternoon
Unfortunately, the situation is not improving.
A child passed away this morning, following two cardiac arrests and a pulmonary hemorrhage. We are trying to stay optimistic, but this event has affected us. May his soul rest in peace.
Throughout the day, his saturation continues to decrease step by step, despite everything we try to do. At 15:42 it’s at 84.
The beeps of the machines amplify our stress.
We have one hope left: the results of the blood culture. But it takes an enormous amount of time (too long according to the doctor). We tried to put pressure on the hospital about this.
But it’s Sunday! (It feels like we’re in France!)
Opinion of the hospital doctor:
- Blood tests not too bad
- X-ray a bit worse
- Waiting for blood culture results (delay too long)
- I mentioned a possible fungal infection? (poorly maintained air conditioning)
Opinion of the French doctor who is monitoring us remotely:
“Still the upper right lobe focus and on Hervé in front of the middle paramediastinal lobe and on the left towards the lower lobe, we can’t see the pleural pulmonary recess well at the bottom.. this contrasts with the areas of hyperlucency of the functional lungs..
It’s a bit early in relation to the change of antibiotics to see notable effectiveness, between the 2 x-rays the differences are not very significant. Still heavy.”
“I understand you because at this age, this type of infection that lasts, with involvement of both lungs, unknown germs resistant so far to usual antibiotic treatments.. it’s not reassuring.. we can only hope that the new antibiotics will do their job quickly..
It’s a difficult battle for him and for the intensive care doctors, we must never give up and fight with all the weapons available.. the outcome obviously depends on it.. will the treatment act now? 2 or 3 days for a visible effectiveness of antibiotic therapy.. if this is the case, the CRP should notably decrease, the pulmonary areas should clear up and a clinical improvement should be felt.. nothing is certain without an antibiogram and unidentified germ.
In an infection of this type at this age, everything is complicated and nothing is won in advance.. we can only wait for a clearing thanks to the treatment, but indeed nothing is reassuring for the moment.. the team maintains his vital signs to avoid destabilization, while waiting for a desired improvement and recovery, but nothing is certain.. we would need a rapid improvement, even minimal, but showing that the treatment is effective and that they are on the right track..
Unfortunately, no one can completely reassure you in the current state of the situation.. I sincerely hope that there will be a favorable turnaround in the coming hours for your baby.. the struggle is tough.. more courage in this unbearable wait..”
