Hello, my boy
Yesterday morning we went by ambulance to the hospital for your sweat test, to find out if you have cystic fibrosis.
Results: in 3 days.
We also had to check your gastric tube with the gastroenterologist by doing an X-ray, but it seems there was a risk of Covid, so it was canceled. And perhaps that’s for the best.
We kept our usual routine:
Your mother leads the way and handles the paperwork and administration with great patience (which is much needed). A person helping us carries you and touches nothing. And I’m behind with your oxygen, opening doors and securing the path so you’re always protected. We never go unnoticed
For the occasion, we also put a mask on you. You were so cute with your two big eyes peeking out.
We were told we’d have to wait until 8 AM. The hospital was packed.
Even with your tube and oxygen, you were far from being the most serious case. I was shaken seeing so many children in distress.
A little one was literally crawling on the floor, with both legs in casts, while some adults found it funny. I didn’t understand. I didn’t find it funny. I just thought, is this world upside down? We talked about it again last night with Mom. She was also shocked.
I’m tired of seeing these health plans boast about “giving a smile” to their patients when it’s quite the opposite. Of seeing people lie and go to church on Sunday to “wash away” their mediocrity. Of seeing politicians on all sides being showered with millions of reais so that others can continue their business…
Last night I was totally depressed and lost. I even wrote a post that I eventually unpublished because it was so dark.
Anyway, today will be better.
We must be strong and believe.
I love you
Dad
