08:48 AM
Gabriel had a good night beside his mother.
This morning, he was a little awake, then fell back asleep peacefully.
Overall, his clinical conditions remain similar to yesterday’s with the same settings on the machine and a saturation > 98%.
However, I still had to kill 15 ants in 30 minutes next to his bed. Fortunately, a nursing assistant came to help me: she cleaned everything around with great professionalism, carefully disinfecting the walls, structures, windows, around the bed, etc. I reported the situation to the management again, specifying that this nursing assistant did an exemplary job.
(Sorry to tell everything here, but I’m also doing it to keep a record of everything that’s happening.)
Yesterday, the doctor informed us that they were considering changing the site of Gabriel’s central access before starting pulse therapy. I don’t know yet when this procedure will take place, but it should logically happen before Friday.
As a reminder, a central access is a catheter placed in a large vein, to allow the administration of medications or treatments over a long period. It is currently in the left leg.
5:14 PM
Our little Gabriel is doing like a champion, with oxygen saturation always above 98% and the machine adjusted to 35% oxygen concentration.
Regarding nutrition, he’s starting to transition to “Infatrini”, a medical nutritional formula to help babies with growth delays or malnutrition catch up on their weight curve.
He has already recovered well and is starting to get chubby cheeks!
In fact, when you see him, you get the impression that he’s doing well.
It’s “just” his lungs that need a lot of time to recover.
The nursing assistant today was wonderful.
Gabriel offered her “the biggest poop of his life”. 80g of happiness! We had a good laugh.
9:17 PM
When I finished writing my post at 5:20 PM, Manuela called me to say that I needed to return to the hospital urgently: someone from the regional management had come to speak with me.
So I rushed to the hospital, thinking for a moment that they might be kicking me out because of my recent criticisms, which were sometimes a bit too harsh.
But in reality, it was the Director of Nursing for the entire northern region of Brazil who had come to listen to us, following the open letter we had given to the staff and which had been forwarded to her.
We were able to express all the problems we’ve been observing for weeks.
We received apologies and promises of improvement. I won’t go into details here.
This meeting doesn’t solve everything, but it’s an important step. It gives us renewed strength and hope for the future.
