In response to feedback from doctors who have recently examined Gabriel, we have compiled all their detailed reports.
These documents have been forwarded to our health plan, along with a formal request to strengthen Gabriel’s care. In particular, to support his development and well-being, given his complex situation and the risk of regression.
Today we received the hospital’s response.
It arrived in the form of a very administrative, very “legal” text, in which we were informed, in summary, that they were refusing to take on these requests.
No surprise there.
But let’s take five minutes to think about it…
Every day, there are people who get up in the morning and decide, somewhere in an office, whether or not a child has the right to live (well).
I sometimes wonder how these people explain their profession to their own children?
“My son, today I’ve decided that your school friend won’t be allowed to live well.
He’ll never be able to breathe properly. He may never be able to use his arms.
Yet I know how to help him, but I’ve decided no means no, because I’ve got to get my paycheck at the end of the month”.
I just don’t think I’ve been trained to understand that kind of logic.
But that’s all right.
“All will be well, thanks to God”
