As you know, the last few days have been very trying, not least because of the contradictory information from the hospital.
One day we’re told his case is very serious, the next that it’s less so. We’re told he’ll be discharged in three days, then in a month… It’s unmanageable.
Today, we had an appointment with the hospital’s doctor coordinator.
Perhaps the only person (along with the shrink) in whom we still have a modicum of faith.
They know how to show empathy, a rare resource here.
From now on, we’ll listen only to her.
The rest will be noise.
She has promised that a pneumologist who already knows Gabriel will follow him up, starting today, face-to-face.
To be continued…
Saying makes you laugh. Doing makes you shut up. So I hope I don’t have to open it.
Nothing is clear about his condition. No one can really say.
He is currently breathing with 1 L of oxygen per minute, doing physiotherapy and receiving his treatments.
The evolution is unpredictable: it can last 2 years, 5 years… or a lifetime.
What’s certain is that his lungs will remain fragile, and he’ll need lifelong protection against respiratory infections.
He’ll probably need regular treatment, and may have to wear a mask, especially during high-risk periods, to prevent further infection. And we’re going to put all our faith in the growth of his lungs!
Yesterday, an online doctor spoke of a very serious case; today, the coordinator considers it to be more in the “less serious” range of cases she knows of.
(Basically, I don’t think we give a damn, and we shouldn’t today).
For the moment, we’re preparing our life here:
- Contract signed for one year in an apartment (we got the keys on Saturday)
- Organization with the hospital of a home care plan when he is discharged (home care with oxygen, physiotherapist, pediatrician, speech therapist, etc.).
- Some consultations will take place at the hospital
We still have a Plan B: to return to France, probably to a hospital in Lyon or Paris.
We are waiting for the department manager’s return from vacation (August 25) to discuss the matter.
I also asked for a quote for medical repatriation: estimated cost between €30,000 and €160,000, with full medical care from departure to hospitalization in France. But it would probably be risky. To be studied calmly.
Finally, we’re still looking for someone to take care of our Pompom.
With Gabriel, we can’t have any animals.
She’s a sweet little cat, spayed, vaccinated, chipped, rather shy but very loving.
She can be moved anywhere in the Ceará region.
