Hello, son,
Today’s letter will be a little shorter.
Yesterday went pretty well.
You had a few crying spells, but much less than on previous days. Sometimes I feel like you’re crying simply because you’re tired of seeing all the healthcare professionals constantly disturbing your daily routine, and I understand.
You’re still coughing a bit more than usual, and that worries us a little. But the good news is that you didn’t have any issues during meals yesterday,
On Sundays, we always try to spend a little more time together, just the three of us. It’s our quieter day, the one where I try not to work or, at least, to do less.
What I mainly take away is that you seem increasingly able to do without oxygen.
Yesterday, you were at 0.2 L/min and you tolerated it well. The only problem is when you cry, or when you stop breathing, and then you tend to become cyanotic.
But we can really feel your body getting stronger and that you’re making progress.
It’s a great improvement, and I wanted to note it, because every little bit of progress counts!
Big hug,
Until tomorrow,
Dad.
