8:35 AM
Gabriel had a stable night with his cousin Welinton.
It’s really wonderful to have their help, it allows us to recover well and have fresh ideas.
On our side, the night was a bit stressful, as we were waiting for news about the pneumothorax last evening, but we didn’t get any.
This morning, at 7:30 AM, the doctor told me that today’s X-ray was much better. This means that the oxygen therapy (I think that’s the right term) has worked. And as a result, good news: they were able to bring the oxygen level down to an acceptable level (60% at 9 AM).
I saw the blood test results, which also seem positive (CRP still decreasing), but I’m waiting for the official feedback from the doctor to be certain.
This morning, I was able to watch the physiotherapist’s massage. Gabriel was very awake and, despite the loss of volume in his arms and legs, he has incredible strength.
He wiggles in all directions, and sometimes manages to pull his arm out of the sheets and stretches it out like a little Superman. So cute!
It feels so good to see him like this. We are happy and enjoying this moment.
The key point coming up is the sampling scheduled for tomorrow in his trachea, to check if the Stenotrophomonas maltophilia bacteria is still present.
We will have the results on Friday, and if it has disappeared, he will be able to start his pulse therapy over several days to reduce the inflammation in his lung and move on to the next stage.
So we’re praying that this bacteria is no longer there!
4:12 PM
The machine has been adjusted several times to gradually reduce the oxygen concentration. It is currently set to 40%.
Gabriel is stable. His saturation varies between 88 and 100%, depending on whether he’s sleeping or moving.
He is calm.
He has developed a small habit: he puts his thumb in his hand and closes his fingers over it. The physiotherapist has applied small strappings to limit this reflex, so that it doesn’t become too systematic and doesn’t impact either his motor development or hand posture.
Regarding nutrition, he continues the different dietary stages of his regimen: first Neosketch, then Pregomin, and now Aptamil Sem Lactose (if I’m not mistaken).
He is also stopping continuous feeding and is now switching to meals every two hours.
All of this is done in stages, with gentle transitions, to respect his rhythm and promote good digestive tolerance.
The goal is for him to gradually absorb as many calories as possible to become a strong baby again!
