Hello, son,
Yesterday, I was wondering when I’d give you access to all this.
Maybe the day you ask me why you’re having trouble breathing.
This question scares me.
And even if it’s written that your illness can never be cured, I still have hope that you’ll pull through.
Your mom and I watch you grow every day, and what progress you’re making!
You really are the strongest!
Yesterday was a busy day.
At 6:30 AM, we learned that Geraldine would not be coming to help us, because her daughter had a motorcycle accident on her way to school.
Your mom had scheduled some important appointments at the public hospital to try and get follow-up with specialists free of charge, and I have a lot of work to do.
So we let Mom go to the hospital and spent the morning together. It went pretty well, despite visits from all the doctors and the oxygen man, who woke you up just as I’d managed to get you to sleep.
Another important point: ever since your mom learned that your cousin Maïté had a cow protein allergy, she’s been campaigning doctors to tell them that a lot of your problems probably stem from that.
The pediatrician (the one we pay, not the one who’s supposed to follow you through the health plan but isn’t actually a pediatrician) authorized us to change milk to test.
We started 15 days ago, switching fromInfatrini to Neocate, and since then you’ve been doing much better.
Yesterday was the day of the reverse test: we tried the Infatrini again.
Well, the test wasn’t conclusive… you screamed in pain, and my poor Gabi, your c** was all red and you had patches too.
Your mom was probably right all along.
(Reading this she’ll probably say, “as always” hahaha)
I say that because I always like to have a specialist’s opinion before trying something, and your mom is more on maternal instinct. I think that must be the case for many families.
We’re also exhausted from seeing you consume improperly measured amounts of milk, with this unmanageable manual flow rate, as we wait for the organization that is supposed to help you to finally deign to add an automatic regulator to your file.
So we’ve been looking for a machine to rent or buy for 2 days.
Strangely, there’s nothing available to rent.
So we bought this dispenser ourselves yesterday, second-hand, for 1,500 reais.
We’re going to start using it today. I think it will be much better for you.
Your mom did a great job yesterday: in the morning, she arranged all future appointments with professionals at the public hospital, and in the afternoon, she looked after you.
Here, the public sector is a bit like in France (as is the private sector in France). You make an appointment and have to wait months.
In the afternoon, you also stayed with your mom and spent some time in your playpen, which we’ve set up in the living room.
You seem to love it!
And here’s some good news: we’re expecting some family from France to come and say hello for Christmas 😉
Originally, we were going to spend Christmas there. One of the things I wanted you to do was meet your great-grandmother Jeannine and grandpa Christian, who aren’t really the traveling type, but that’s just a temporary reprieve!
As soon as possible, we’ll go there.
And remember what I promised you on the night of 12/05.
I think about it every day. And this day will be magical.
I love you, son.
PS: Attention guardian angels who read the articles, we continue to sell what we have.
The list is here if you’re interested or know someone: https: //hopeforgabriel.com/a-vendre/
