I’m not in the mood…
Gabriel had a good night. We tested the NIV and this morning he woke up without tachycardia.
It also has far fewer sedatives, almost none at all.
The day with Mom went pretty well.
His oxygen catheter was replaced correctly, as it didn’t fit properly in his nose.
The doctor has been in, and Gabriel will have further heart tests as well.
But this evening, when I arrived around 9pm, I immediately saw that her stomach tube had come out several centimetres.
In fact, when they replaced the catheter, the probe came out by about 15 centimetres… and nobody noticed!
So they re-attached the tube as if nothing had happened, and administered milk and medication all afternoon…
Once again, we have to go through the probe change protocol…
Alert the nurse, who calls the doctor, who orders an X-ray.
The X-ray arrives 30 minutes later… but the machine has broken down. They bring out an old model, a real dinosaur, which can’t see the image in real time. The result: we wait for the test to be processed, for the doctor to come back, for them to remove the tube, to put in a new one… Gabriel almost chokes on his bronchiolitis obliterans, we take another X-ray, and again we wait for the doctor.
It’s 2 a.m., and I’m still waiting for the X-ray check-up, then the doctor.
I feel like I’ve been raped without Vaseline every day for months.
