Hello Filho,
Yesterday, your caregiver was sick.
Your mom too.
So, we spent the day just the two of us.
While your mom was preparing everything behind the scenes—milk, medication, groceries, the house, etc.—you and I were inseparable.
It’s funny, son. Before you were born, I was so scared I wouldn’t know how to take care of you.
Today, I think it’s what I love doing most.
I tell myself I’m so lucky to have you with me that I want to cherish every moment.
There’s nothing more precious than spending time with you.
Everything else doesn’t matter.
I believe you truly become an adult when you become a parent.
And with everything we’ve already been through, and everything we’re still going through, the meaning of life changes completely. Comfort no longer matters at all. We just want to live and enjoy life together. It’s almost a physiological need.
We’re going back to the fundamentals of Maslow’s hierarchy of needs.
The world could fall apart, but if you’re next to me, I don’t care.
Anyway. We spent this day together, read books, tried to do some floor exercises, and juggled between medications and specialist visits.
Your face, hands, and feet are covered in spots (thanks, hand, foot, and mouth disease!).
The physio gave you a laser session to help with healing.
The speech therapist also came to help you eat again. You’ve started sweet potato.
It’s worth noting, because many people are mistaken about this (myself included), that speech therapy isn’t just about learning to speak.
In your case, it’s about teaching you to swallow and eat properly. You’ve been fed via a tube for 7 months. We hope to get rid of it before you turn one. That would be wonderful.
I’ve also noticed that you continue to have a lot of reflux. Every time you’re given liquid through the tube, you cough afterwards. It’s thirty minutes of regurgitation and irritation, and it causes you pain.
We’re also still selling our things. Yesterday, Dad sold his old DJ speakers.
With your godfather Bastien, we were DJs for many years, and we’d bought a big JBL system that packed a punch and got people dancing! They’d been gathering dust in a garage for about ten years. Thanks to Uncle JP who took care of them!
Note that we still have other things for sale: kites, a bike, a computer, etc.
Finally, we’re starting to post stories on the Instagram account we created for you.
We have an idea brewing, but we’re not entirely sure yet. You’ll have to follow the account to find out 😉
I’d like to take this opportunity to thank everyone who sends us donations once again.
It’s a real boost for us. Thank you from the bottom of our hearts.
You’re about to wake up, so I’m going to go to your side.
I love you
Dad
