Hey son,
It’s been a few days since I last wrote to you. I’ve been very busy.
Your mom had to go back home to take care of her work. It’s her busy season. Even though the money earned during this period is long gone, it was important that her clients were well taken care of. She did what was necessary and came back last night.
During these past few days, we’ve stayed together. Well, never truly just the two of us, since there’s always someone to help us. And Grandpa and Grandma also came to see us every afternoon.
It’s not easy to be present all the time. There’s so much to do.
Today, I don’t see how one person could take care of you all by themselves.
It seems impossible to me. Because there’s everything we need to prepare behind the scenes: food, medication, planned specialist visits, and unplanned visits… As a result, every 30 minutes there’s something to do (besides taking care of you).
But despite everything, I take great pleasure in taking care of you, in doing things for you. It makes much more sense than sitting in front of a computer, even though I love my job.
Here, I’m doing something real, something tangible. And most importantly, I’m doing it for you, little potato. And it’s awesome to be paid in smiles.
I tell myself that when I’m gone one day, at least I’ll have spent quality time with you.
The big challenges of the last two days have been water and medication. Especially in the morning, upon waking, when the first thing to do is give you the esio. You hate it. It’s complicated, but we manage.
Yesterday, you drank five times more than the day before. That tells me we’re on the right track, even if your lips are a bit dry.
I think you lost a bit of weight at the beginning of the week after the tube was removed, but I have the impression it’s slowly coming back. Anyway, you’ve never been a very big baby. You expend an enormous amount of energy with your bronchiolitis obliterans because you have to breathe much more than a ‘normal’ child. All the food we give you, the oils we add to increase calories, you burn them very quickly.
And unlike Dad, you’re very muscular. Your rib cage is constantly working. Your abdomen, your abs, even your arms are strong. Your body adapts. It fights. It moves forward.
You are a true warrior!
Today is the 24th. Tonight, we’re going to celebrate Christmas Eve with Grandpa and Grandma.
We haven’t prepared anything, we’re thinking of making chicken and fries ^^
But in the end, we don’t care, all we want is to be together.
Thank you from the bottom of my heart.
I love you, little potato
Johann
P.S. for the guardian angels:
I’d like to take this opportunity once again to thank all our donors.
You’re giving us a huge boost to maintain all of Gabriel’s care.
Thanks also to everyone who shares the donation campaign on social media.
It’s just a share, but the impact is huge!
And if everyone gives just a little, in the end it means a lot for Gabriel.
Thanks also to my clients who have continued to trust me from the beginning.
A heartfelt thank you also to all the specialists who have been helping and supporting us since our discharge from the hospital. I imagine it hasn’t always been easy to manage.
Thanks to all these guardian angels, we are able to provide Gabriel with all the care he needs to recover as quickly as possible.
And we’ll be able to celebrate this first Christmas without a feeding tube, with a little baby who can now sit up perfectly. Which wasn’t a given when we left the hospital on 09/24!
We wish you excellent holiday celebrations with your loved ones and family!
Love and joy.
Enjoy life!
