Yesterday, I failed in my mission: I didn’t write an article.
The reason?
I had a nervous breakdown in the evening and couldn’t stay in hospital.
Why?
Because this hospital is driving us crazy!!!
On 08/09, we paid for a consultation with one of the best infectiologists in the region. An elderly doctor who takes the time to listen and examine his patients. He gave us a series of recommendations (genetic tests, vaccines…), some of which had already been given by French hospitals. I passed them on here, but was almost laughed out of the room…
He also confirmed that cases of obliterative bronchiolitis like Gabriel’s are common in countries like Brazil, because hospitals lack the skills to properly welcome and treat patients…
I left that consultation feeling as if I’d almost condemned my son by having him born in Brazil. And even more so by bringing him to this hospital. I already blame myself for letting him get bronchiolitis in the first few months.
Then I went to the archives to retrieve Gabriel’s medical file.
Result: you have to pay.
And, of course, it’s impossible to get a digital version (even though everything is entered into a software program on a daily basis).
I was asked to pay 230 reais to print 2,300 pages.
Very practical…
So I had to look for an organization to rescan the whole thing.
Relentless logic? Or simply a desire to complicate the lives of families? It makes you wonder!
Later that afternoon, Manuela calls to tell me that the service organizing Gabriel’s home care plan (after hospitalization) seems unable to take on board all the medical recommendations.
That’s all we’re told. We’re just asked to wait. Yet another source of tension.
That evening, when I arrived at the hospital, Manuela asked me to take some disposable gowns back to reception. I don’t understand at the time. I then learn that the head of the nursing department has decided to deny us access to the protective gowns, on the pretext that Gabriel doesn’t have a virus and that we should return the one we borrowed.
An absurd logic, which totally denies the importance of prevention. Unacceptable, especially when you consider that for over a month now, we’ve been paying for all the protection – to the point where staff sometimes come and help themselves. And on the one day we dared to ask the hospital to provide us with some, here’s the answer we received.
That was the last straw!
Luckily, Manuela got me out. And I spent the rest of my nerves on the street.
And I received a message from a French friend in Fortaleza: another hospital in the same chain as the one we’re in has been denounced by a well-known local media outlet.
The little icing on the cake. Further proof that this hospital chain operates in total chaos.
Manuela then returned to Gabriel, who was with Victoria last night.
All day today, Gabriel was alone with Geraldine.
Luckily, our little Gabriel is doing well!
It has been stable for two days.
We don’t know if it’s because he’s getting used to the reduction in sedatives, because we’ve changed his sleeping position, or because we’ve slightly reduced the NIV?
We don’t know, but so much the better!
As for me, today I spent my day defending my family in different ways…
And I’ve also learned that in France, things are starting to move without my having to ask for anything.
This affair seems to be gaining momentum!
At the same time, our house in Barrinha is now rented by a small family (Manuela’s friend, husband and son) for 6 months. Great news!
