Hey there, my little spud!
It’s 5:29 AM and I’m writing to you from the balcony. The sun is rising at the end of the street, and I must admit it’s my favorite time of day. We can still hear the birds singing before the city’s din begins.
The weekend went pretty well.
On Saturday, you were a bit more tired, with that sound that signals a bronchospasm. We had to increase your oxygen because your saturation had dropped, but eventually, you managed to regulate yourself;
You also received a vaccine, the DTPa-HepB-Hib-IPV. It protects against diphtheria, tetanus, whooping cough, hepatitis B, polio, and Hib bacteria. With this, you’ll be even stronger!
On Sunday, we stayed in with family. Usually, there’s always someone with us to help you, but on Sundays, since I don’t work, Mom and I enjoy our time with you, and it’s just the three of us.
Plus, on Sundays you have fewer things to do, and it’s also often the day when healthcare professionals don’t show up. Yesterday, the afternoon respiratory therapist didn’t come without notice…
But otherwise, we really enjoyed our time with you! We put you in our bed for the first time, and it made you laugh a lot!
I must say we are lucky. You smile often, and you laugh too. Sometimes I think that with all the tortures you’ve endured during your first six months, you must love life so much.
Mom and I are trying more and more to think about the future.
We had stopped because it was depressing us, but now we’re starting again.
We’re adapting our plans, imagining our new life as a family of three, with or without your illness.
We’re allowing ourselves to dream and imagine having a house by a lake, if possible with a mountain view.
It would be a big “ranch.”
There would also be other small houses to rent on Airbnb, to secure our retirement and have a little work for our old age.
You could live there without fearing pollution or the viruses circulating in the city. You could run, play outside, and we could even homeschool you if necessary.
The house would be lost in nature, about an hour from a big city.
Mom found a photo, and I used AI to generate one. Here they are:
We don’t know yet where it will be or what it will be like, but we’re going to print a photo that represents this place and put it in your room.
Mom and I often do that. We visualize a goal and focus our energy on it.
Some call it the law of attraction. A few years ago, I believed in it a lot, but after what happened to you… let’s just say…
I prefer to say it’s the law of putting your energy in the right place. The rest is choices, hard work, and a good dose of nature deciding what it wants from us.
Tomorrow morning will be hectic.
We’re going back to the hospital to check your feeding tube, change it if necessary, and do a sweat test to see if you might have cystic fibrosis. To be honest, I don’t believe it, but several specialists are asking us to do it…
I might write on Wednesday.
Lots of love,
Dad
