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06/09

Translation

⚠️ This content is an automatic translation from the original French version. Some expressions may be altered. Feel free to report any mistake or awkwardness.

3h52

Our little Gabi is 5 months old today!

Send her some love 🙂

We’re praying that the sixth will finally be the first out! We believe in it!

He’s just had a small respiratory attack. According to the doctor, this is due to the withdrawal caused by stopping the Lorazepam yesterday, which has the side effect of speeding up his breathing. After a small dose, he should be able to get on with his night.

Today, I’ll probably be making a return trip to Barrinha’s house.
Objective: to recover some of the things we left behind when we left in a hurry in April, and to organize the house so as to rent it out as soon as possible on Airbnb, in order to cover our growing expenses.

I’d also like to take this opportunity to share with you that, even though we spend most of our time in hospital, we still manage to keep up our professional activities.
If you’re ever planning to come on vacation to Preá, you can talk to Manuela about it. And if one day you need a website or web training, you can think of me 😉

21h45

This morning, Gabriel continued his seizure until 9am. We’re starting to worry, because now, every morning, he has this kind of seizure with a noise coming from his breathing (stridor). Each time, he has to receive what they call rescue treatment with Atrovent and Aerolin.

Several hypotheses have been put forward: he’s suffering from hypercapnia, he’s lacking sedative medication, which is disrupting his heart rate and breathing, or his lungs aren’t improving, and we don’t know exactly what’s going on. The doctors advise increasing the NIV, but we sometimes have the impression that this doesn’t necessarily bring any improvement. We’re a bit confused, especially as each doctor says something different.

For my part, I returned to our home in Bariña after 5 months. It’s very strange to come back and see Gabriel’s room, where he only spent 2 days. I’ve cleared everything away, tidied up, loaded the car. And now I’m writing from our room. It’s very strange to be alone in this house. I don’t know if we’ll ever come back here, or what the future holds. But I know we’ve had some good times here.

I also dropped in to see Manuela’s homes: the plants have grown, everything is bigger and prettier. Here in Preá, everything is being built, there’s a strong dynamic. And what a pleasure it is to get out of the city of Fortaleza and breathe the fresh air of the countryside.

Tonight, Gabriel will sleep with his mom and Geraldine. As for me, I’ll be going home tomorrow as soon as I wake up, heading for Fortaleza to unload the car and then go to the hospital.

The content published on this site constitutes personal testimony and the expression of a lived experience at a given time. It is not intended to accuse, judge, or generalize situations, individuals, or organizations.

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