Hello, son,<\/p>\n\n
This is a bit of a raw message because I’m short on time, but I have things to share.<\/p>\n\n
Big week coming up!<\/p>\n\n
The week just before your first birthday!<\/p>\n\n
And there’s a lot to do.<\/p>\n\n
Today isn’t starting well.<\/p>\n\n
Like every Monday morning, we weighed you.<\/p>\n\n
\n And you lost 200 grams.<\/strong>\n <\/p>\n\n You’re back under 8 kilos…<\/p>\n\n And that worries us a lot.<\/p>\n\n We’re trying to understand why.<\/p>\n\n Maybe the new food tests, less caloric?<\/p>\n\n Maybe something else?<\/p>\n\n Maybe also the fact that you’re using less oxygen, even if it’s already very low?<\/p>\n\n The truth is, we don’t really know.<\/p>\n\n So we’re going to try other things.<\/p>\n\n We’re reinventing ourselves again.<\/p>\n\n We’ll try a different approach. Give more often, differently. <\/p>\n\n We’re moving forward a bit blindly.<\/p>\n\n \n This week, we have a lot of appointments.<\/strong>\n <\/p>\n\n Tomorrow we’re going to town.<\/p>\n\n Friday too.<\/p>\n\n Saturday we’re fixing the house roof which is falling apart (I’m exaggerating a bit)<\/p>\n\n And this morning, with this news about the weight, I won’t lie, I feel a bit down before even starting.<\/p>\n\n Yet, this morning, we had a great time together. Laughing in the night! <\/p>\n\n Anyway, let’s move forward. And I just received 2 emails! <\/p>\n\n A renowned French pediatric pulmonologist who approves the BO Community site and will share it with his patients!<\/p>\n\n And there’s something else too. Dad will probably participate in a conference of the French Association for Interstitial Lung Diseases in Children, via video conference. <\/p>\n\n That will allow me to talk about your illness.<\/p>\n\n