Hello, son,<\/p>\n\n
In the last few days, we had some good news that I forgot to share here.<\/p>\n\n
You no longer need your corticosteroid treatment that you’ve been on for 7 months. The doctors decided to stop them because your blood test levels were good. This is another important step! <\/p>\n\n
Now let’s talk about your schedule yesterday.<\/p>\n\n
Like every day when you woke up, you took your medication (esio + domperidone + luftal), then your first morning meal of milk-based jelly that we prepare ourselves. You then received your care, then your second morning meal of fruit, then your respiratory physiotherapy, then your lunch consisting of meat and vegetables. <\/p>\n\n
After all that, you took a short nap late in the morning.<\/p>\n\n
Then your motor physiotherapist arrived. You had a motor skills session, and she also works on your breathing. You were a bit tired, you cried a little. To help you, she also gave you some Atrovent. <\/p>\n\n
\n And after that, we went to the beach!<\/strong>\n <\/p>\n\n Indeed, Carole, your physiotherapist, suggested a few weeks ago that we organize an outing, and we loved the idea.<\/p>\n\n Let’s be honest, after everything we’ve been through, going out with you sometimes scares us. So, in our car, there was you, your mom, Carole the physiotherapist, and me. Once we arrived there, we went straight to the beach. You looked around everywhere as if enchanted. <\/p>\n\n We first looked for a place to sit, and finally, we settled on the sand.<\/p>\n\n And there, you discovered the sand. You put your hands in it and then wanted to put them in your mouth \ud83d\ude42 Next, we wanted to introduce you to the sea. Your Grandma and Grandpa also had an excellent time. They are very happy to see you discovering life, and I think they couldn’t have wished for a better Christmas with us after what they went through in May when you were in the ICU. Then, we went back home.<\/p>\n\n I must tell you, son, that this experience was wonderful. A real life.<\/p>\n\n This gives us a lot of hope for the future, a lot of hope for 2026. I am very happy to have experienced this with you, son.<\/p>\n\n