{"id":3607,"date":"2025-11-07T05:09:03","date_gmt":"2025-11-07T08:09:03","guid":{"rendered":"https:\/\/hopeforgabriel.com\/07-11-25\/"},"modified":"2025-11-15T15:10:52","modified_gmt":"2025-11-15T18:10:52","slug":"07-11-25","status":"publish","type":"post","link":"https:\/\/hopeforgabriel.com\/en\/07-11-25\/","title":{"rendered":"07\/11\/25"},"content":{"rendered":"\n<p>Hello, son,<\/p>\n\n<p>A new day begins. It&#8217;s 4:40 in the morning, and I&#8217;m standing on the balcony of our apartment in Fortaleza. The city is asleep, but you&#8217;re already awake. You&#8217;re up early.     <\/p>\n\n<p>Yesterday was your birthday month, and like every month since you graduated from UTI, we celebrated with a little cake. This time, it was a carrot and chocolate cake, which we ate together on the balcony. And for the first time, we allowed ourselves to take off the mask (2 minutes) for the photo.  <\/p>\n\n<p>The nutritionist has given us new doses for your diet, which we&#8217;re going to start today. The aim is to keep you gaining weight. Last time, you didn&#8217;t put on any weight, and that obviously worried us a little.  <\/p>\n\n<p>We know that your post-infectious bronchiolitis obliterans are making you use more energy. Every breath you take requires more effort, more strength. So we&#8217;re watching every milliliter of your food!  <\/p>\n\n<p>Yesterday, I made an important decision: to make public everything I&#8217;ve written about you.<br\/>Until now, it&#8217;s been our secret garden, protected from search engines. But I think the world needs to know.<br\/>I want other parents, other families going through the same ordeal, to be able to find information, comfort and guidance. <\/p>\n\n<p>Yesterday, I also spoke with a mom from Madrid on <a href=\"https:\/\/www.instagram.com\/bronquiolitis_obliterante\/\" data-type=\"link\" data-id=\"https:\/\/www.instagram.com\/bronquiolitis_obliterante\/\" target=\"_blank\" rel=\"noreferrer noopener nofollow\">Instagram<\/a> whose 5-year-old child has the same illness as you. This reminded me of the idea to create a website dedicated to this disease.<br\/>It&#8217;s under construction, but here&#8217;s the URL: <a href=\"https:\/\/bocommunity.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/bocommunity.org\/<\/a><br\/>I will list the various specialists, known cases worldwide, treatments, and testimonials there. <\/p>\n\n<p>The idea is to build a global community, so that no one crosses this desert alone. And above all, so that we&#8217;re among the first to know if there&#8217;s a new treatment, a new drug, a new hope. <\/p>\n\n<p>It&#8217;ll take time, but it&#8217;ll be useful. Not just for you, but for all the little warriors like you. <\/p>\n\n<p>On that note, I&#8217;ll come see you quickly because you seem to be crying, and I think Nadine needs help.<\/p>\n\n<p>See you tomorrow, my little hero.<\/p>\n\n<p>I love you<\/p>\n\n<p>Dad<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Hello, son, A new day begins. It&#8217;s 4:40 in the morning, and I&#8217;m standing on the balcony of our apartment in Fortaleza. The city is asleep, but you&#8217;re already awake. You&#8217;re up early. Yesterday was your birthday month, and like every month since you graduated from UTI, we celebrated with a little cake. This time, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_analysis_target_kw":"","iawp_total_views":0,"footnotes":""},"categories":[29],"tags":[],"class_list":["post-3607","post","type-post","status-publish","format-standard","hentry","category-memoirs-of-a-heros-dad"],"_links":{"self":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts\/3607","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/comments?post=3607"}],"version-history":[{"count":0,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts\/3607\/revisions"}],"wp:attachment":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/media?parent=3607"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/categories?post=3607"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/tags?post=3607"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}