Good morning, little man,<\/p>\n\n\n\n
A new day begins. It\u2019s 4:40 in the morning, and I\u2019m on the balcony of our apartment in Fortaleza. The city is asleep, but you\u2019re already awake. You\u2019re an early riser. <\/p>\n\n\n\n
Yesterday was your monthiversary, and like every month since you came out of the ICU, we celebrated it with a little cake. This time it was a carrot and chocolate cake, which we ate together on the balcony. And for the first time, we allowed ourselves to take off the mask (for 2 minutes) for the photo.<\/p>\n\n\n\n
The nutritionist gave us new amounts for your feeds, which we\u2019re starting today. The goal is for you to keep putting on weight. Last time, you hadn\u2019t gained any, and of course that worried us a bit.<\/p>\n\n\n\n
We know that your post-infectious bronchiolitis obliterans makes you burn more energy. Every breath takes more effort, more strength. So we keep an eye on every milliliter of your food!<\/p>\n\n\n\n
Yesterday, I made an important decision: to make everything I\u2019ve written about you public.
Until now, it was our secret garden, hidden from search engines. But I believe the world needs to know.
I want other parents, other families going through the same ordeal, to be able to find information, comfort and something to steer by.<\/p>\n\n\n\n
Yesterday I also chatted on Instagram<\/a> with a mom from Madrid whose 5-year-old has the same disease as you. It reminded me of the idea of creating a website dedicated to this disease. The idea is to build a worldwide community, so that nobody has to cross this desert alone. And above all, so that we\u2019re among the first to know if there\u2019s a new treatment, a new medicine, a glimmer of hope.<\/p>\n\n\n\n It\u2019ll take time, but it will be useful. Not just for you, but for all the little warriors like you.<\/p>\n\n\n\n And on that note, I\u2019m off to see you, because it sounds like you\u2019re crying and I think Nadine needs a hand.<\/p>\n\n\n\n See you tomorrow, my little hero.<\/p>\n\n\n\n I love you<\/p>\n\n\n\n Dad<\/p>\n","protected":false},"excerpt":{"rendered":" Good morning, little man, A new day begins. It\u2019s 4:40 in the morning, and I\u2019m on the balcony of our apartment in Fortaleza. The city is asleep, but you\u2019re already awake. You\u2019re an early riser. Yesterday was your monthiversary, and like every month since you came out of the ICU, we celebrated it with a […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"iawp_total_views":0,"footnotes":""},"categories":[29],"tags":[],"class_list":["post-3607","post","type-post","status-publish","format-standard","hentry","category-memoirs-of-a-heros-dad"],"_links":{"self":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts\/3607","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/comments?post=3607"}],"version-history":[{"count":3,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts\/3607\/revisions"}],"predecessor-version":[{"id":6825,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/posts\/3607\/revisions\/6825"}],"wp:attachment":[{"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/media?parent=3607"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/categories?post=3607"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hopeforgabriel.com\/en\/wp-json\/wp\/v2\/tags?post=3607"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
It\u2019s still under construction, but here\u2019s the URL already: https:\/\/bocommunity.org\/<\/a>
On it, I\u2019ll list the different specialists, the known cases around the world, the treatments, the testimonies.<\/p>\n\n\n\n