{"id":265,"date":"2025-05-09T11:01:15","date_gmt":"2025-05-09T14:01:15","guid":{"rendered":"https:\/\/hopeforgabriel.com\/home\/"},"modified":"2026-02-04T16:31:53","modified_gmt":"2026-02-04T19:31:53","slug":"home","status":"publish","type":"page","link":"https:\/\/hopeforgabriel.com\/en\/","title":{"rendered":"Home"},"content":{"rendered":"\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Hope For Gabriel<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Support Association for Children with Bronchiolitis Obliterans<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Overview and History<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Hope for Gabriel<\/b><\/span> is an association born from the story of our son, Gabriel.<\/p>

Born on April 6, 2025, in perfect health, Gabriel was hospitalized at 3 weeks old for bronchiolitis.<\/p>

During his hospitalization in Brazil, he contracted several hospital-acquired infections and went through a major medical ordeal.<\/p>

After 5 months in the hospital, he was discharged with a diagnosis of post-infectious bronchiolitis obliterans<\/strong>, a rare chronic disease that affects the small airways.<\/p>

This association aims to inform, support affected families, and raise awareness about this still largely unknown disease.<\/p>

This site allows sharing all of this. It is run by Johann, Gabriel’s dad. <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t

Useful links<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tEvent History<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tDonate<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSend Love<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t
\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tInstagram @FamilyRoche<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Blog<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Hello, Gabriel’s Dad here!<\/p>

On this site, I share his regular progress<\/b>, our struggles, our victories, and ideas I’d like to pass on to him when he’s older.<\/p>

These texts are my future letters to him, and for everyone accompanying us on this journey.<\/p>

I call these the “Memoirs of a Hero’s Dad”<\/span>:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t

Latest posts<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t
\n\t\t\t\t
\n\t\t\t\t

\n\t\t\t\n\t\t\t\t27\/04\/2026\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\n\t\t\n\t\t\tRead article >\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t
\n\t\t\t
\n\t\t\t\t
\n\t\t\t\t

\n\t\t\t\n\t\t\t\t21\/04\/2026\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\n\t\t\n\t\t\tRead article >\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t
\n\t\t\t
\n\t\t\t\t
\n\t\t\t\t

\n\t\t\t\n\t\t\t\t11\/04\/2026\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\n\t\t\n\t\t\tRead article >\t\t<\/a>\n\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t<\/div>\n\t\t\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t

Heure \u00e0 Fortaleza (Br\u00e9sil) : 09:43:23
Derni\u00e8res modifications : 27\/04\/2026 13:43:27<\/p>\n<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n \u26a0\ufe0f This content is an automatic translation<\/strong> from the original French version. Some expressions may be altered. Feel free to report any mistake or awkwardness.\n <\/div><\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t

\n\t\t\t\n\t\t\t\t27\/04\/2026\t\t\t<\/a>\n\t\t<\/h3>\n\t\t\t\t
\n\t\t\t\t\t\n\t\t\t27\/04\/2026\t\t<\/span>\n\t\t\t\t<\/div>\n\t\t\n

Hello, son,<\/p>\n\n

I’m publishing this post and you’re currently on my lap.<\/p>\n\n

Here’s the latest news.<\/p>\n\n

You still don’t need oxygen and you’re keeping your saturation above 92, even at night! WELL DONE! <\/p>\n\n

This morning, like every Monday, I weighed you, and you’re back to the weight you had two weeks ago. It’s not really a victory, because you’re bordering on malnutrition, but it is one nonetheless: you haven’t continued to lose weight. <\/p>\n\n

Since your nanny Fabi moved back to Fortaleza for good, it’s really just the three of us at home. It’s a change for us, and we’re learning to adapt. And maybe, in a way, it’s also helping you find your bearings again. <\/p>\n\n

The problem is that you weren’t eating anymore, and especially that you couldn’t stand eating while sitting. By having all our meals together as a family, it seems like this behavior is starting to change. It gives us hope. <\/p>\n\n

Last week, we learned that a child with the same disease as you, over eight years old, was going to be listed to receive a lung transplant. The second one in three months among our contacts in Brazil. I can’t even imagine what those parents are going through. And as parents of a child with the same disease, it doesn’t reassure us about your future. <\/p>\n\n

You know, son, I don’t know if we’ll have to go through that stage one day. Your aunt did it at 18, the year your dad was born, and she managed to have a good life afterward. But if we can spare you that, we will. <\/p>\n\n

It’s obvious that as parents, we’re doing everything possible to reach the miracle we’re all waiting for.Why so much suffering for a child who did nothing wrong?Seeing you have to take all these medications.Seeing you do these breathing exercises that make you cry.Seeing you get poked regularly for tests.Seeing you have to avoid experiencing life to the fullest to protect yourself from life itself.<\/p>\n\n

When I look at you, you’re so beautiful, so perfect.And for one month of life, a bad virus and adult mistakes, your life is in danger.<\/p>\n\n

I have a hard time accepting it. I don’t think I’ll ever accept it, actually. <\/p>\n\n

But that’s life…<\/p>\n\n

The truth is that miracles are rare.Religion, extremely present in Brazil, doesn’t change health itself: it’s a balm that soothes fear, a hand to hold onto when everything is shaking. It can be precious for moving forward, but we also need to focus on what really affects your body. <\/p>\n\n

That said, that’s my view of things. What I really want is for you to keep an open mind, to listen to different voices, and to choose the path that will do you good. <\/p>\n\n

The thing is, your lungs can still grow and improve until you’re eight. After that, it’s over. What will really impact your improvement is absolutely avoiding viruses, continuing the exercises, having good nutrition, and, I hope, advances in science. <\/p>\n\n

With your mom, we’re looking for studies that go in that direction. But there’s nothing today that can erase the scars in the lungs.We know that dupilumab, in certain circumstances, helps prevent contracting new viruses, which might allow you to have a “normal” and “social” life. <\/p>\n\n

We absolutely must keep raising awareness about your disease. Grandpa’s project, lescolsdusouffle.com<\/a>, will help us do that in France. On that note, we’re looking for companies that want to donate prizes for the raffle! <\/p>\n\n

We’re also trying to bring patients together with BOCommunity<\/a>, to show that there are many of us and that we’re searching. But I sometimes get the feeling that some people don’t want to be visible. I admit I don’t understand why. The goal is so much more important. <\/p>\n\n

To ease this pain I sometimes feel, I like to think about your future, about the possibilities that will open up to you. Mentally trying to find solutions. Understanding how we can contribute to giving you the longest path possible, taking into account your situation and the state of the world. <\/p>\n\n

I’d like to jump into the future and see that you’re doing well, that you have a normal life.That all this daily suffering leads to something positive.<\/p>\n\n

AI will probably change everything, it’s already started.As I write these lines, LLMs are in fashion; in your time, the models will understand the world.<\/p>\n\n

Maybe they’ll find how to regenerate those scars that make your lungs so fragile.<\/p>\n\n

And you, what will you do in the future? <\/p>\n\n

Sometimes, when I see you playing with your piano, I listen to Il jouait du piano debout<\/em> by France Gall, and the lyrics give me both sadness and hope. <\/p>\n\n

I tell myself that becoming an artist or athlete, in your case, would make perfect sense.<\/p>\n\n

And then, in a world where machines will do more and more things, I tell myself that artists will always remain useful. So why not? You’d have so much to share! <\/p>\n\n

Here, I’m going to tell you a secret, son. <\/p>\n\n

I have a friend I used to host events with, and he’s setting up a venue to host receptions. <\/p>\n\n

I saw photos of him there: he was taking his son, who’s just a bit older than you, to the construction site. <\/p>\n\n

I imagined celebrating our wedding anniversary there with your mom, and you bringing us the rings. I’m going to keep that image in the back of my mind. <\/p>\n\n

I also have lots of more positive things to tell you. Since you turned one, you’ve been changing so much. Some really cool moments: <\/p>\n\n